A recent survey conducted by The Ohio State University Wexner Medical Center and College of Medicine revealed a striking statistic: about 25% of American adults suspect they may have undiagnosed ADHD. Of that group, only 13% have shared their concerns with their doctors. This data sheds light on a growing trend among adults who believe they might be living with ADHD without an official diagnosis, and it raises questions about the influence of online quizzes and social media on self-diagnosis.
The Rise of Self-Diagnosis: Exploring “Hidden ADHD” in Adults and the Role of Professional Evaluation
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About 25% of American adults suspect they have undiagnosed ADHD, influenced by online quizzes and social media, though these tools lack the rigor required for proper diagnosis.
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In adults, ADHD often presents with inattention, trouble concentrating, disorganization, and difficulty functioning at home or work. These characteristics can be present in the normal population and in many other medical and mental health conditions, making diagnosis complex. A professional evaluation is essential to rule out other potential conditions and ensure accurate treatment.
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An official ADHD diagnosis can be life-changing, providing access to personalized treatment plans which may include medication, therapy, accommodations at work, and/or coaching to improve focus, relationships, and well-being.
The Influence of Online Quizzes and Social Media
Over the past few years, the internet has exploded with quizzes and checklists for various mental health conditions, including ADHD. These screeners are widely accessible, quick to complete, and often shared on social media platforms like TikTok, where influencers and content creators discuss their personal ADHD experiences.
However, these online tools are not diagnostic instruments. They are one-size-fits-all informational devices that lack the scientific rigor required for a thorough and accurate assessment of ADHD. In many cases, they place improper emphasis on symptoms that may not even be related to ADHD at all. For example, stress, anxiety, bipolar disorder, depression and other mental health conditions involve symptoms that overlap with those of ADHD. Chronic stress, sleep problems, health conditions, substance use, and untreated psychological conditions can profoundly influence an adult’s attentional capacity over time. Even positive life changes, such as a new job, marriage, or having children, can cause adults to lose mental focus. Though these feelings are often quite valid and real, the fact that someone may be experiencing symptoms commonly associated with ADHD does not mean that ADHD is present, and a self-diagnosis based on limited, subjective data, such as an online quiz, is not appropriate and should not be taken seriously.
Online tools may serve as a starting point for those seeking to learn more about ADHD, or help to alert individuals that it may be worth seeking further consultation. However, experts emphasize that only a trained mental health professional can actually diagnose the condition. Without a proper evaluation, individuals risk receiving an inaccurate diagnosis and missing out on the appropriate treatment.
The Complexity of Diagnosing ADHD in Adults
ADHD is often viewed as a childhood disorder. This is because it must first present in childhood; however, we know that some individuals are not diagnosed in childhood and that those with ADHD carry symptoms into adulthood. It is not unusual for ADHD symptoms to become more prominent as individuals age and they have an increase in their daily demands, such as managing relationships, children, and high stress jobs. Adult ADHD can be particularly difficult to diagnose because the symptoms look different than they do in children. For instance, while hyperactivity and impulsivity may be key features in children, adults with ADHD often struggle more with inattention, mental fatigue, and feeling scattered and often have difficulty managing responsibilities. These symptoms can significantly affect an individual’s daily life, from work performance to personal relationships.
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How to Diagnose ADHD in Adults
The diagnostic process for adult ADHD will vary depending on someone’s specific concerns and history. At a minimum, it involves a comprehensive evaluation by a mental health professional, including a detailed review of the person’s medical and psychiatric history, a review of current symptoms, and standardized questionnaires. Sometimes a more detailed evaluation through psychological or neuropsychological testing is needed, especially if past treatment has been ineffective. Often, evaluation of ADHD in adults includes getting information from someone else who knows the person well, such as a spouse or parent. Adults who suspect they have ADHD should be prepared to provide historical information from childhood, as ADHD symptoms have an onset early on in life, even if they were not recognized or diagnosed at the time.
The Impact of ADHD on Daily Life
Living with undiagnosed ADHD can be exhausting. Adults with ADHD have difficulty managing their time, staying organized, and prioritizing tasks. Many of these individuals find it difficult to maintain focus, especially during lengthy or monotonous tasks. As a result, they may miss work-related deadlines or experience forgetfulness, leading to feelings of frustration or failure.
Adults with ADHD often encounter misunderstandings or conflicts in their relationships. A person with ADHD may forget important dates, lose track of conversations, interrupt, or have difficulty following through on promises or plans. Spouses of individuals with ADHD often feel that their significant other is not contributing equally to household responsibilities, such as parenting, managing finances or completing chores, even though they are trying their hardest. This can strain personal relationships, leading to feelings of guilt and frustration for both parties.
Fortunately, an accurate diagnosis and appropriate treatment can significantly improve the quality of life for adults with ADHD. Once diagnosed, individuals can work with their healthcare provider to create a treatment plan that addresses their specific needs. Treatment often involves a combination of ADHD medication, therapy, and behavioral interventions that can help individuals develop strategies to manage their symptoms more effectively.
Why a Professional ADHD Evaluation Matters
The rise in ADHD self-diagnosis through online tools shows how accessible these resources have become, how much more information about ADHD is available to the general population, and that many adults believe that they have ADHD and/or believe that they are experiencing symptoms commonly associated with ADHD. While online quizzes are quick and easy, the risks of self-diagnosing are high. Self-assessment and social media can raise awareness about ADHD and help individuals recognize symptoms, but they should not be considered a substitute for a thorough evaluation by a trained mental health professional using reliable and valid diagnostic methods in a clinical setting.
Psychiatrists, psychologists, and other healthcare providers are trained to assess ADHD symptoms in the context of a person’s overall mental and physical health. They can help determine whether other conditions may be contributing to the symptoms, such as anxiety, depression, sleep disorders, or cognitive decline, and they can work with individuals to develop a comprehensive treatment plan. For many adults, living with undiagnosed ADHD can feel like an uphill battle. The struggles with focus, memory, planning and organization can be overwhelming, and the impact on personal relationships and professional life can be significant. However, a proper diagnosis can be life changing. Adults should consider seeking a professional evaluation when they experience five or more of the hallmark symptoms of ADHD, such as difficulty focusing, impulsivity, forgetfulness, disorganization, trouble getting started, and problems following through with tasks.
Upon receiving any diagnosis, a wave of emotions is natural. “As you grapple with the implications of ADHD for your past and future, it’s important to embrace your emotions—even if they seem contradictory,” says Psychologist Noreen Donovan, Ph.D.
“A diagnosis of ADHD as an adult may come with mixed emotions—relief that arises from knowledge and grief associated with missed, past opportunities. It is important to tune into and accept all these feelings.”
While there is not a cure for ADHD, many adult ADHD treatment options are available and can help alleviate symptoms. Managing the most intrusive adult ADHD symptoms without stifling your unique personality is possible with the help of the right care plan. “It is recommended that adults talk to a professional about their treatment options,” says Donovan. “This includes medication to treat ADHD symptoms in adults, coaching to support executive functioning, and therapy to address common psychological distress including increased stress, anxiety, depression, low self-esteem, and underachievement.”
Some people avoid discussing their concerns with a mental health professional because they are concerned that what they are experiencing might not be ADHD. Finally learning whether you have ADHD can be hard, but you’re not alone; your health care providers are there to support you through diagnosis and treatment.
LifeStance offers an array of ADHD evaluation services for both adults and children. These include appointments with psychotherapists and psychiatric clinicians to assess and treat ADHD, as well as comprehensive psychological and neuropsychological testing when diagnosis is unclear or additional treatment planning is needed. Our expert team provides personalized treatment plans that may include therapy and/or medication management, along with other interventions and resources, focusing on a holistic approach to managing ADHD. With flexible options for in-person and online appointments, LifeStance makes it convenient for individuals to receive the care they need.
Citations
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Recently Diagnosed with Adult ADHD? Here are Your Next Steps (Oct. 18, 2023). LifeStance Health.
https://lifestance.com/blog/recently-diagnosed-with-adult-adhd-here-are-your-next-steps/ -
Substance Abuse and Mental Health Services Administration. DSM-5 Changes: Implications for Child Serious Emotional Disturbance [Internet]. Rockville (MD): Substance Abuse and Mental Health Services Administration (US); 2016 Jun. Table 7, DSM-IV to DSM-5 Attention-Deficit/Hyperactivity Disorder Comparison. Available from: https://www.ncbi.nlm.nih.gov/books/NBK519712/table/ch3.t3/
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Survey finds 25% of adults suspect they have undiagnosed ADHD (Oct. 14, 2024). The Ohio State University Wexner Medical Center.
https://wexnermedical.osu.edu/mediaroom/pressreleaselisting/survey-finds-25-percent-of-adults-suspect-they-have-undiagnosed-adhd
Contributed By
Dr. Certilman is a clinical neuropsychologist and serves as LifeStance’s Director of Evaluation Services for New York State. Dr. Certilman evaluates patients across the lifespan, from school-aged children through older adults, to conceptualize and treat cognitive, behavioral, emotional, and/or functional challenges. Dr. Certilman has specialized interest and training in working with adults and older adults with neurological illness or disease, such as concussion/ traumatic brain injury, stroke, epilepsy, Parkinson’s disease, multiple sclerosis, Lyme disease, and mild cognitive impairment and/or dementia. Dr. Certilman also enjoys working with children and their families to not only address the child’s areas of difficulty, but also identify strengths that might bolster the child’s success. Dr. Certilman believes in a holistic approach to evaluation and treatment planning that incorporates data on brain-behavior relationships with relevant psychological, academic/occupational, and social history to optimize patient outcomes.
Dr. Certilman received her doctorate degree in clinical psychology from the University of Indianapolis. Her predoctoral internship was at St. Vincent Neuroscience Center where she completed rotations in outpatient neuropsychological assessment, inpatient neurorehabilitation, and adolescent behavioral health. She completed a two-year post-doctoral fellowship in clinical neuropsychology at Stony Brook University Medical Center where she evaluated children and adults in an outpatient setting. Previous research interests include performance validity and the impact of transient factors on assessment of attention. In her free time, Dr. Certilman enjoys hiking, cooking, traveling and spending time with her partner and son.